Diana 1234's Journal, 12 September 2019

So Im pretty devistated right now..About a month ago I started having trouble grasping weights at gym. I noticed I had pain in left hand and elbow while doing bicep curls as well. Since I workout 6 days a week I blew it off as gym "pain." Then my left hand swelled 3xs the size! Went to dr and now have a diagnosis of CCPD Disposition Disease. Has anyone heard of this? Its an arthritic auto immune disease. It is progressive n no cure. The pain was unbearable but Im determined to try diet ( apparently the Mediterranean diet is helpful) and no meds. Any info or advice would be appreciated. 😞💜💜

Diet Calendar Entry for 12 September 2019:
141 kcal Fat: 2.33g | Prot: 14.10g | Carb: 16.02g.   Breakfast: Oatmeal, Equate Whey Protein Supplement, Coffee. more...

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Comments 
Sorry, no info, just sending support! At least you have a diagnosis, so you can work on working with it. Hug. 
12 Sep 19 by member: jengetfit123
I put an article source on my journal about your diagnosis. Google CPPD DISPOSITION DISEASE and choose the one from the American College of Rheumatology. Are you Keto? 
12 Sep 19 by member: Kenna Morton
Keyten— you have CPPD as well? It is not the same thing as gout. 
12 Sep 19 by member: Kenna Morton
Like Jeng, no info but lots of support. 
12 Sep 19 by member: tatauu22
@Keyton77 . I have read lots of articles on internet. Pretty much have info overload at this point..lol. I do have Hashimotos and Reynards, which are also auto immune. I do not do Keto. Im in maintenance mode now but have been doing low carb, low fat, and high protien. It worked very well for me. Lost almost 40 lbs on it. I have a nutritionist and she is also researching eating plans for me. Im trying to go no processed, which Ive done before.  
12 Sep 19 by member: Diana 1234
Oh, Diana, I am so sorry. My autoimmune disease started with extreme pain and swelling. I did as much research as possible and found that a diet with no preservatives and additives was the most beneficial. My trigger foods contain nitrates and nitrites. No longer have pain and only rare occasions of swelling. I am now able to lift on a regular basis and include Yoga. Have also remained on the same low dosage of anti-spasm meds and have gone from weekly infusions to every 21 days. Hope this helps Kenna and keyten have given some great advice. 
12 Sep 19 by member: Erquiaga
Sorry to hear about your diagnosis. Best wishes... 
12 Sep 19 by member: John10251
Best wishes, Diana - 
12 Sep 19 by member: gz9gjg
@Keyten77. I didnt mean for you to delete article! Im grateful for advice! My comment was just that there are so many articles on internet I dk what to believe. I appreciate direction. Your advice is helpful. Thank u!💜💜💜 
12 Sep 19 by member: Diana 1234
Diana, just know that some of the research can be scary. I had to take a break and focus on my specific symptoms. 💙💙💙  
12 Sep 19 by member: Erquiaga
Sending support for finding healing. 
12 Sep 19 by member: erikahollister
My heart goes out to you. You will feel better. Keyten has done wonders with her health. Stay in touch with her, if anyone can help you, it’ll be her!! All the very best to you Diana (my mom’s name too!😊) 
12 Sep 19 by member: wifey9707
Diana, have you ever heard of Katsuzo Nishi. He was focused on health and eating healthy. you can find his book on Amazon. autoimmune diseases now are more frequent than we tend to admit. Sad thing is that it is because of what we eat. I would advice you to to do some things like fasting, dont eat read meets..., but I dont think I in position to do it. the best it to do research on your own. when you get overwhelmed stop, take a break. and if you can get Nishi's book, do it. read it, it just may help to find the answers. best of luck! 
12 Sep 19 by member: skilin1978
@skilin1978 I have not heard of him but will definetly check him out! Thank u for info! I find it interesting because up till about 3 months ago I was doing about 80% no processed but I was trying to eat alot of protien as I was trying to build muscle. I dont really like red meat so if I do 75 gs of protien a day that was good for me..I see now that I may have to incorporate other meats/fish in diet.and o t he 
12 Sep 19 by member: Diana 1234
I'm sorry to hear. My aunt was diagnosed with a crippling, incurable arthritis disorder. She started to improve her strength by swimming - she had to start with just moving her fingers slightly. She is really in shape now, entered body training competitions, does yoga several times a week, has a perfect shape. Swimming can be your friend or water exercises to reduce stress on the joints. 
12 Sep 19 by member: Paperbackstash
SEE THIS: https://www.mayoclinic.org/diseases-conditions/pseudogout/diagnosis-treatment/drc-20376988 and stop calcium supplements if you are on them. Use Vitamin D to increase parathyroid uptake, decreased deposition of calcium deposits. See also this: https://www.mayoclinic.org/diseases-conditions/pseudogout/diagnosis-treatment/drc-20376988 -- you already know it's not gout but check treatment section. DO NOT DESPAIR. Rest in between weights.  
12 Sep 19 by member: claireosullivan
It's 'incurable' simply because the have no pills for it. It is very curable with diet. Replace grains and sugars with good fat s a good start.  
12 Sep 19 by member: Diddlee
Wifey— Keyten has accomplished so much and is an excellent role model. 
12 Sep 19 by member: Kenna Morton
I believe the best thing your you ( and everyone) is the anti- inflamatory diet and life style ... as much as possible 
12 Sep 19 by member: BanjoStories
I have followed Keyten's example and I am pain free, med free, hair has come back healthy, maintaining my weight, and...as Keyten put it...feel much freeer!  
12 Sep 19 by member: AboutMyTribe

     
 

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