cjgriffith1's Journal, 18 July 2023

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Tuesday still in hospital. 2nd IVIG infusion and PET scan scheduled today. Staying here through Thursday - not sure if I will be discharged on Thursday or Friday. Nurse weighed me this morning. I can’t eat or drink today until after the PET scan which is scheduled for 1:30.

187.0 lb Lost so far: 3.0 lb. Still to go: 27.0 lb. Diet followed reasonably well.

Diet Calendar Entry for 18 July 2023:

1028 kcal

Fat: 44.98g | Prot: 46.61g | Carb: 108.01g. Lunch: Creamed Macaroni with Cheese, Chocolate Chip Cookie (Home Recipe or Purchased), Tartar Sauce, Dole Creamy Coleslaw. Dinner: Boost Boost Plus Chocolate, Chicken Parmesan, Great Value Vegetable Medley. Snacks/Other: Saltine Crackers, Chicken Broth, Bouillon or Consomme, Snack Pack Juicy Gels Sugar Free. more...

losing 10.5 lb a week

13 Supporters Support

Comments

I hope you're home and feeling better quickly ❣️

18 Jul 23 by member: 2melons

You ever get to eat anything? Do your scan go okay? Hope your having a better day.

18 Jul 23 by member: Leah_guffey

Best best wishes that you get good news very soon

18 Jul 23 by member: Yearofhealth2023

Wishing you a speedy recovery!

18 Jul 23 by member: CeCeDoesIt

Hopefully you'll get answers soon!💜

18 Jul 23 by member: Diana 1234

Sending well wishes . Hope you feel better 🙏💙

18 Jul 23 by member: CharlieLovesChaplin

Thank you so much for the support. I was discharged from hospital last night) and was so glad to be home and sleep in my own bed last night. I don’t have a definite diagnosis yet but all indication are Inclusion Body Myostitis. One of the symptoms is trouble swallowing. I’ve received immunoglobulin by iv and it has seemed to help. Tracking food through this app is helping me be sure I get enough protein and am making healthy food choices (plus not drinking alcohol).

21 Jul 23 by member: cjgriffith1

Sorry to hear that the treatment is so limited with that disorder. At least you are home now. Rest well and hopefully you can get some respite from your symptoms for now until the doctors are able to come up with a more effective treatment plan. Hugs

21 Jul 23 by member: Leah_guffey


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cjgriffith1's Journal, 18 July 2023

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