Mjgh06's Journal, 29 July 2018

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I had a horrible night last night. I think I counted between 10-12 seizures. Usually they are small and only effect me - my husband won't wake up from them or even feel them. But last night, he woke up several times with them so they were pretty big. I finally just got up and stayed awake around 5am but my head still hurts today.

We were talking about it this morning with me apologizing and I realized why they were so bad. We were out late with boating yesterday and my alarm for my meds went off. I completely forgot to take them when we got back to the house. So yes, I still most definitely need my seizure meds.

Between the night seizures and the daytime dystonia/dyskinesia I am a hot mess. I so hope my weight loss and diet will eventually get it all under control.

Diet Calendar Entries for 29 July 2018:

1156 kcal

Fat: 90.96g | Prot: 70.10g | Carb: 12.27g. Breakfast: Kroger Finely Shredded Mexican Style Cheese, Coffee (Brewed From Grounds), Kroger Water, Kroger Heavy Whipping Cream. Lunch: Kroger Water, lC Gravy, Kroger Fresh Selections 50/50 Blend. Dinner: Peanutty Chicken Stir-fry, Kroger Water. Snacks/Other: Unsalted Butter Stick, Kroger Mexican Style Cheese. more...

2131 kcal

Activities & Exercise: Resting - 20 hours, Sleeping - 4 hours. more...

26 Supporters Support

Comments

I am sorry you had such a bad night, aweful when you forget your meds. My husband has to take his twice a day.

29 Jul 18 by member: baskington

Thx @baskington I was able to cut down to once a day when I went into ketosis. It just makes me realize how weak I still am with it hiding just under the surface. But at least I know why I have seizures - from my car wreck and then again with the wrong prescribed med. Most people just don't know the cause.

29 Jul 18 by member: Mjgh06

I hope you have a better night tonight. Xo

29 Jul 18 by member: Kim4dogNite

sorry... I'm epileptic so I understand the ordeal of dreaming with seizures

29 Jul 18 by member: mikebelljr68

I’m sorry about that, at my job I see little ones having seizures and yes...they do look painful

29 Jul 18 by member: rosio19

** Huge Hugz **

29 Jul 18 by member: adefwebserver

My menopausal symptoms always occur while sleeping Last night was severe itching all over my body. Shucks!

29 Jul 18 by member: Damaris Berdut

I’m so sorry that’s happening to you, stay strong!

29 Jul 18 by member: mrsroboto

hugs. just take the best care of you that you can.

29 Jul 18 by member: Ellamac77

Thanks for all the well wishes. I have been dealing with this since 2003. Short version - I had a car fall on my head as I was getting out from under it. ------------ @mikebelljr68 I don't have RBD wish I did sometimes. The right side of my skull was crushed in and I was diagnosed with Frontal Temporal Lobe Epilepsy (FTLE). I have a few lesions but I refuse to get removal for them as I feel it is just scar tissue from healing - they have never increased in size. Thank you for the concern. I hope your woe is helping with your epilepsy.----------@baskington has your husband changed his woe with you? Either way I wish him well. Thank you. Between my seizures and strokes I have had, my memory sucks.

29 Jul 18 by member: Mjgh06

nope my husband gets keto dinners most of the time but the rest of the day he eats as he will. if he wants carbs with dinner I just add it for him. but he enjoys my keto dinners just fine. he is watching his weight though.

30 Jul 18 by member: baskington

sorry @mjgh06... that was a spell check thing... I typed "dealing with seizures" my phone changed it to "dreaming" #BigFingersSmallKeypad

30 Jul 18 by member: mikebelljr68

I can't imagine the amount of relentless challenges you have, are and will face. I pray this storm is short lived.

30 Jul 18 by member: adamevegod1


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