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sararay's Journal, 08 September 2011
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(TMI alert)
I ended up in the ER about two months ago for abdominal pain. It felt like a bladder infection but urinalysis came back negative. After many tests (ultrasound, CT scan) they said all that they could find was colitis?? I have been in remission from Crohns Disease for over 8 years and I went in for bladder pain, so IDK. So the doctor got me in with a new gastroenterologist and I am having a colonoscopy today (BTDT and the prep is the worst part!!) When I met with the gastro prior to scheduling this procedure she looked through all my past history (14 years worth of charts) and said she saw nothing that indicated that I ever had Crohns Disease.... YEA! So, a lot is hanging up in the air. *sigh*
I feel that the ER took the easy diagnosis and that I am spending a lot of money on medical care that is leading me in the wrong direction, but at this point I just want to hear what this new doc has to say. If I don't have CD it won't really change my life, just my perception of the last 8 years especially because I have not had any "flare-ups" and have been able to maintain my health.
I talked to my nurse practitioner (who I go to for "yearly exams" and who I know professionally as well) and she mentioned something that I had actually found while researching bladder pain online. Interstitial Cystitis. She suggested that if everything comes back negative and the pain continues that I go to see a urologist. GREAT! I have been reading up on treatment of this condition and quite frankly I'm not going to take the medication if it is still all experimental. I don't want to be a guinea pig, so looking on to see natural remedies first. The mayo clinic site suggests elimination of high-acid foods, carbonation, caffeine, tomatoes and artificial sweeteners. That doesn't sound too hard and something I should be doing anyway.
The thing is that taking cranberry pills helped, so I think I might be on to something. Food has healed me before. As long as they rule out other things that really need medical attention, I will just keep trying to get better on my own.
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 Comments
I have taken cranberry for 20 years...it is all i need to stop the interstitial cramps
08 Sep 11 by member: veggies yuk
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Thanks veggies!!! That is very encouraging! :D
08 Sep 11 by member: sararay
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If they don't see anything with the colonoscopy they will probably tell you that you have IBS. That's what happened to me a few years ago. I know that I don't really have IBS, my issues are hormonal (thyroid,etc), but they like to use the IBS diagnosis when they don't know what the hell else it is. I don't think you are too far off the mark with the idea of food as medicine. Just keep eating foods that are minimally processed and I think that will make a huge difference. I hope you feel better soon!
09 Sep 11 by member: slease
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Update: it is still Crohns Disease and the inflammation is spreading around so I feel it in the surrounding organs.
28 Sep 11 by member: sararay
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